During the acute episode
Eye involvement can evolve quickly. Published ophthalmology reviews emphasize early examination and close follow-up during acute SJS/TEN.
For patients, families, and care teams
SJS/TEN eye care at every stage.
From the acute episode through long-term recovery, find ophthalmology education, specialist directories, and research opportunities built around the needs of people affected by SJS/TEN.
Patient guide
The SJS/TEN Patient Guide
A 14-page booklet written for survivors and their families: what SJS/TEN is, what to expect during and after hospitalization, what each specialty looks after — skin, eyes, gynecology, urology, pulmonology, mental health — and questions to bring to your own doctors. It has space to write their answers down.
Led by Dr. Eden Lake and Djoni Elkady, Loyola University Medical Center, with contributions from 7 specialists including Dr. Charles S. Bouchard. Shared under CC BY-NC-ND 4.0. Reproduced here unaltered, with thanks.
Where to start
Five places to look.
Directories, practical guidance, research, and the people behind the program.
Find Care
Directories of burn centers, eye departments, and specialty lens providers across the United States.
Burn Centers · Ophthalmic Care · Scleral Lens & PROSE · EyePrintPRO & ScanFitPRO · Genetic TestingLiving with SJS/TEN
Practical guidance for the weeks after discharge and the years that follow.
After Hospital Discharge · Long-Term Care · Support Networks · Advocacy · Education MaterialsResearch
Studies, trials, and treatments under investigation for SJS/TEN.
Ongoing Studies · Clinical Trials · Treatments in the Pipeline · Donate to ResearchNews & Events
Program updates, upcoming events, and writing from the team.
Events · BlogAbout
Who we are, who we work with, and how to reach us.
Our Team · Collaborate with Us · Contact
SJS/TEN & the eye
Eye care matters at every stage.
SJS/TEN can affect the eye surface during the acute illness and later in recovery. The right care plan is individual, but early ophthalmology involvement and continued follow-up are recurring themes in the medical literature.
Through recovery
Follow-up care may focus on the eyelids, tear film, conjunctiva, and cornea as the ocular surface heals.
For long-term eye health
Ongoing care may include an ocular-surface specialist and, for some patients, evaluation for scleral lenses or PROSE treatment.
General education only. Read the clinical review of acute and chronic ocular care or discuss your circumstances with your medical team.