Section
About
Who we are, who we work with, and how to reach us.
What this program is
STOP SJS is the SJS/TEN Ophthalmology Program. It exists because of a specific, fixable gap: people with Stevens-Johnson syndrome and toxic epidermal necrolysis are treated in burn units, while the eye damage that shapes much of their remaining quality of life is treated by cornea and ocular surface specialists — and those two groups are not reliably connected to each other.
The work has two halves. The first is mapping what already exists: which burn centers have ophthalmic care attached, where specialty scleral lens provision is available, and where the gaps are. The second is making that map useful to the people who need it — survivors, families, and the clinicians who will most likely see one case of this in their career.
What we publish, and what we do not
Everything in our directories is institution-level. We publish eye departments, burn units, and counts of specialists — not the names or contact details of individual physicians, who have not agreed to appear on a patient-facing website.
Where a link between a burn unit and an eye department is our own inference from geography rather than a confirmed relationship, we say so on the listing itself. Twenty-five of the current entries are inferences of that kind.